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Las Vegas Review Journal Article on our family
After losing their daughter to rare disease, a Henderson family has created a foundation in her honor Make-A-Wish Disney World Trip, April 2011 – Members of the Ostrea family, clockwise from left,...
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Tomorrow’s balloon release
July 25th ~ Little Miss Hannah’s Rainbows in the Sky Event If you are unable to make our event on July 25th and would like to have a balloon released with your personal message to someone special,...
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Our Rainbows to the Sky Event
(click for event program) On July 25, 2012, the Little Miss Hannah Foundation launched ourselves into the Las Vegas community with our “Rainbows to the Sky” event, our first fundraiser and community...
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Jumping into the Big Pond
Next month, my husband and I are going to the first annual RARE Tribute to Champions of Hope Gala and the patient advocacy meeting they are hosting the next day. This will be a place where patient...
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Hannah is making her mark!
The Little Miss Hannah Foundation was awarded the Genzyme Patient Advocacy Leader 2012 Award for our school-involved World Rare Disease Day program! We were only one of 9 organizations world-wide to...
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Scentsy Fundraiser for Little Miss Hannah Foundation
Marie-Luise Smith, the generous woman who donated 20 Scentsy buddies to our organization last month, is hosting a Scentsy Party for our Little Miss Hannah Foundation! She has offered to donate her...
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Little Miss Hannah Foundation is Heading to Washington D.C. to Advocate for...
Written by Robert Ostrea Daddy and our Little Miss Hannah This year, I will be representing the Little Miss Hannah Foundation at the Legislative Conference & Lobby Day, organized by the Rare...
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Little Miss Hannah Goes to Washington!
Senator Dean Heller meets with us and the Hempel Family It has been an absolutely crazy, wonderful, inspiring, and emotional week! I won’t go into detail about what we did because my husband has been...
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Little Miss Hannah Continues to Impact our Rare Disease Community
Little Miss Hannah and her mom, Carrie Ostrea Rare Disease Impact Report quantifies patient and caregiver challenges on journey to diagnosis and beyond (Reposted from My San Antonio media) (BPT) –...
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Little Miss Hannah’s “Rainbows in the Wind” Event – July 24th!
Click for more details! Only two months until our big July event! Please be sure to join us at Town Square on July 24th, 2013 at 5:30 pm. Picture it…hundreds of colored feathers blowing in the wind,...
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